HDSA Support Groups are offered by HDSA chapters, affiliates, regions, and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader.
Support groups can offer vital emotional support along the continuum of HD, valuable advice about community-based resources as well as guidance from other support group members about many of HD’s most challenging situations. Support groups can meet monthly or quarterly depending upon the number of participants and wishes of the group. Support groups can be established for everyone in the HD community - caregivers, those living with HD, those living at risk, youth at risk, etc.
Do note that dates and times are subject to change. Please contact the group facilitator to confirm dates, times, platforms/locations.
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SUPPORT GROUPS for Washington State, Idaho, Oregon and Montanta |
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| Open To All |
Recently tested gene positive - Second Monday of the month at 7pm EST/4pm PT Recently tested gene negative - Fourth Thursday of the month at 7pm EST/4pm PT |
| WASHINGTON STATE | HDSA Washington State Open Virtual Support Group 1st Mondays of each month, 6:00 - 7:30 p.m. Susan Reynolds, LICSW, sreynolds@hdsa.org Jessie Zheng, LICSW, jzheng@hdsa.org, (360) 618-3325 Registration and meeting link: https://heypeers.com/meetings/41877/details HDSA Washington State Caregiveres / Loved one ONLY Virtual Support Group 1st and 3rd Mondays of each month, 6:30 - 8:00 p.m. Delene Jewett Galvin, LMFT, Delene@spu.edu Registration and meeting link: https://heypeers.com/meetings/39217/details HDSA Seattle Virtual Support Group 1st Wednesdays of each month, 6:00 - 7:30 p.m. Vivian Foxx, LICSW, vivfoxx@yahoo.com Registration and meeting link: https://heypeers.com/meetings/41854/details HDSA Seattle In-person Support Group 3rd Tuesdays of each month, 6:00 - 7:30 p.m. Jessie Zheng, LICSW, jzheng@hdsa@hdsa.org, (360) 618-3325 The Seattle Public Library - Green Lake Branch 7364 East Green Lake Drive N. Seattle, WA 98115 Email or call the facilitator to RSVP HDSA Spokane In-Person Support Group 2nd Tuesdays of each month, 6:00 - 7:00 p.m. Molly Bartleson, LICSW, molly74@comcast.net, (509) 720-4284 Steven Gleason Institute of Adaptive Technology 325 East Sprague Spokane, WA 99202 Email or call the facilitator to RSVP * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| IDAHO | HDSA Idaho In-Person Support Group 2nd Wednesdays of each month, 6:30 - 8:30 p.m. (MT) Anne Spencer, MS, LCGC, annespencerhd@gmail.com Wright Congregational United Church of Christ 4821 W. Franklin Road Boise, ID 83705 HDSA Idaho In-Person Caregiver Support Group January, April, July, and October on the 4th Thursday of the month: 7:00 p.m. (MT) Nichole Todd, LCSW, NTodd@hdsa.org Panera Bread 3421 N. Eagle Road Meridian, ID 83646 * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| OREGON | HDSA Oregon Caregiveres Virtual Support Group 1st Wednesday of each month, 6:30 - 8:00 p.m. Rachel Lynn, LCSW, lynnr@ohsu.edu Registration and meeting link: https://heypeers.com/meetings/41868/details * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| MONTANA | HDSA Montana Open Virtual Support Group 2nd Wednesdays of each month, 6:00 - 7:00 p.m. (MT) Nancy McCourt, MSW, (406) 405-4284, nmccourt@hdsa.org Email or call the facilitator to RSVP * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| There are virtual supports groups available for all U.S. residents regardless of your state and/or region. Information include: - HD Positive, Early Symptoms - HDSA's National Youth Alliance (NYA) Support Group: Gene Negative - Beginning your HD Journey (for people who are just learning of HD) - HD Bereavement Support Group - HDSA Caregiver Support - Juvenile HD Support Group - At Risk / Gene Positive - At Risk / Not Tested Support Group If you are interested in learning more about the groups listed above, please click here https://hdsa.org/find-help/community-social-support/hdsa-support-groups/. |
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