HDSA Support Groups are offered by HDSA chapters, affiliates, regions, and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader.
Support groups can offer vital emotional support along the continuum of HD, valuable advice about community-based resources as well as guidance from other support group members about many of HD’s most challenging situations. Support groups can meet monthly or quarterly depending upon the number of participants and wishes of the group. Support groups can be established for everyone in the HD community - caregivers, those living with HD, those living at risk, youth at risk, etc.
Do note that dates and times are subject to change. Please contact the group facilitator to confirm dates, times, platforms/locations.
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WASHINGTON |
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| Open To Washington State Residents Only |
Vivian Foxx, LICSW |
| Open To All |
Recently tested gene positive - Second Monday of the month at 7pm EST/4pm PT (Jan 8th) Recently tested gene negative - Fourth Thursday of the month at 7pm EST/4pm PT (Jan 25th) |
| Everett (Snohomish) |
DELENE JEWETT GALVIN, LMFT – CAREGIVERS/LOVED ONES ONLY |
| Kirkland |
DELENE JEWETT GALVIN, LMFT |
| Olympia/ Puyallup |
SUSAN REYNOLDS, MSW, LICSW |
| Seattle |
VIVIAN FOXX, MSW at VIVFOXX@YAHOO.COM |
| Idaho | ANNE SPENCER, MS, LCGC ANNESPENCERHD@GMAIL.COM Second Wednesdays: 6:30 to 8:30 p.m. (MT) Wright Congregational United Church of Christ 4821 W. Franklin Road, Boise, ID 83705 Currently meeting in person – Email to join |
| Oregon |
Currently has no local support groups. Check out an HDSA Online Support Group. |