HDSA Support Groups are offered by HDSA chapters, affiliates, regions, and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader.
Support groups can offer vital emotional support along the continuum of HD, valuable advice about community-based resources as well as guidance from other support group members about many of HD’s most challenging situations. Support groups can meet monthly or quarterly depending upon the number of participants and wishes of the group. Support groups can be established for everyone in the HD community - caregivers, those living with HD, those living at risk, youth at risk, etc.
Do note that dates and times are subject to change. Please contact the group facilitator to confirm dates, times, platforms/locations.
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WASHINGTON STATE SUPPORT GROUPS |
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| Open To All |
Recently tested gene positive - Second Monday of the month at 7pm EST/4pm PT Recently tested gene negative - Fourth Thursday of the month at 7pm EST/4pm PT |
| Everett (Snohomish) |
Group Facilitator: |
| Kirkland |
Group Facilitator: |
| Olympia/ Puyallup |
Group Co-Facilitator: |
Seattle |
Group Facilitator: |
| Spokane (in-person) | Group Facilitator: Molly Bartleson, LICSW email: molly.74@comcast.net phone: (509) 720-4284 Please call or email facilitator if you are interested in joining. 2nd Tuesdays of each month - from 6:00 to 7:00 p.m. Location: Steven Gleason Institue of Adaptive Technology 325 East Sprague Spokane, WA 99202 * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| Idaho | Group Facilitator: Anne Spencer, MS, LCGC email: ANNESPENCERHD@GMAIL.COM Second Wednesdays: 6:30 to 8:30 p.m. (MT) Wright Congregational United Church of Christ 4821 W. Franklin Road, Boise, ID 83705 Currently meeting in person – Email to join * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * |
| Oregon | Oregon Caregivers Support Group are available for Oregon residents: Virtual support groups for caregivers & loved ones are available for Oregon residents. 1st Wednesday's of the month - 6:30 to 8:00 pm Register at https://heypeers.com/meetings/41868/details |
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| There are virtual supports groups available for all U.S. residents regardless of your state and/or region. Information include: - HD Positive, Early Symptoms - HDSA's National Youth Alliance (NYA) Support Group: Gene Negative - Beginning your HD Journey (for people who are just learning of HD) - HD Bereavement Support Group - HDSA Caregiver Support - Juvenile HD Support Group - At Risk / Gene Positive - At Risk / Not Tested Support Group If you are interested in learning more about the groups listed above, please click here https://hdsa.org/find-help/community-social-support/hdsa-support-groups/. |
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