HDSA Support Groups are offered by HDSA chapters, affiliates, regions, and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader.

Support groups can offer vital emotional support along the continuum of HD, valuable advice about community-based resources as well as guidance from other support group members about many of HD’s most challenging situations. Support groups can meet monthly or quarterly depending upon the number of participants and wishes of the group. Support groups can be established for everyone in the HD community - caregivers, those living with HD, those living at risk, youth at risk, etc.

Do note that dates and times are subject to change.  Please contact the group facilitator to confirm dates, times, platforms/locations.

 

WASHINGTON STATE SUPPORT GROUPS

   
Open To All

Recently tested gene positive - Second Monday of the month at 7pm EST/4pm PT 

Recently tested gene negative - Fourth Thursday of the month at 7pm EST/4pm PT 
Age range 18 - 24 - Third Tuesday of the month at 6pm EST/3pm PT 
Age range 25 - 35 - Third Wednesday of the month at 7pm EST/4pm PT 
EMAIL HERE FOR MORE INFORMATION & TO JOIN

Everett (Snohomish)

Group Facilitator: 
Delene Jewett Galvin, LMFT – Caregivers/Loved Ones Only 

email:  Delene@SPU.EDU

1st and 3rd Mondays:  6:30 to 8:00 p.m.
Virtual via Zoom – Email to join
 

Kirkland  

Group Facilitator: 
Delene Jewett Galvin, LMFT 

email:  Delene@SPU.EDU

2nd and 4th Wednesdays: 6:30 to 8:00 p.m.
Virtual via Zoom – Email to join
 

Olympia/ Puyallup

Group Co-Facilitator: 
Susan Reynolds, MSW, LICSW

email:  SReynolds@HDSA.ORG
phone: (206) 426-2080

and

Group Co-Facilitator: 
Jessie Zheng,  W, LICSW, SUDP

email:  jzheng@hdsa.org
phone:  (360) 618-3325

First Mondays: 6:00 TO 7:30 P.M.

DATE AND TIME SUBJECT TO CHANGE.  PLEASE CONTACT GROUP LEADER

Virtual via Zoom – Email to join


Seattle

 

Group Facilitator: 
Vivian Foxx, LICSW

email:  vivfoxx@yahoo.com 
1st Wednesday of each month 6:00-7:30pm
Virtual Via Zoom – Email to join at vivfoxx@yahoo.com 


** NEW **
Seattle In-Person Support Group
3rd Tuesday of the month:  6:00 - 7:30 p.m.  
The next Seattle "in-person" support group will be Tuesday, June 17 from 6pm to 7:30pm.  

Location: 
The Seattle Public Library - Green Lake Branch
7364 East Green Lake Drive N
Seattle, WA  98115

Please email Jessie Zheng, LICSW to RSVP before attending 
email:  jzheng@hdsa.org
phone:  (360) 618-3325
 

Spokane (in-person)  Group Facilitator: 
Molly Bartleson, LICSW

email:  molly.74@comcast.net 
phone: (509) 720-4284

Please call or email facilitator if you are interested in joining.
2nd Tuesdays of each month - from 6:00 to 7:00 p.m.



Location: 
Steven Gleason Institue of Adaptive Technology

325 East Sprague
Spokane, WA  99202

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Idaho Group Facilitator: 
Anne Spencer, MS, LCGC

email:  ANNESPENCERHD@GMAIL.COM

Second Wednesdays: 6:30 to 8:30 p.m. (MT)

Wright Congregational United Church of Christ
4821 W. Franklin Road, Boise, ID 83705

Currently meeting in person – Email to join

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Oregon Oregon Caregivers Support Group are available for Oregon residents:

Virtual support groups for caregivers & loved ones are available for Oregon residents.  
1st Wednesday's of the month - 6:30 to 8:00 pm
Register at https://heypeers.com/meetings/41868/details 
 
 
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  There are virtual supports groups available for all U.S. residents regardless of your state and/or region.  

Information include:

   - HD Positive, Early Symptoms
   - HDSA's National Youth Alliance (NYA) Support Group:  Gene Negative
   - Beginning your HD Journey (for people who are just learning of HD)
   - HD Bereavement Support Group
   - HDSA Caregiver Support
   - Juvenile HD Support Group
   - At Risk / Gene Positive
   - At Risk / Not Tested Support Group

If you are interested in learning more about the groups listed above, please click here https://hdsa.org/find-help/community-social-support/hdsa-support-groups/.