HDSA Publications

The Huntington's Disease Society of America (HDSA) has an extensive library of informative books, magazines and pamphlets available at:

Other Publications

Washington State Resources for the Huntington’s Disease Community

This document contains a listing of Washington State Huntington’s disease (HD) resources gathered by Chris Wick, MSW, LICSW, social worker with the Huntington’s Disease Society of America (HDSA), Northwest Chapter. Though many items on this list are not specific to HD, they should be useful to patients, families, caregivers and partners. August 2012

A Caregiver’s Guide to Huntington’s Disease

In these pages, we will cover some of the major symptoms of HD and how the symptoms will change over time. We will also offer suggestions and strategies for coping with the daily challenges presented by HD. March 2011


Treatment Guidelines for Huntington's: Who Needs Them?

Read and share with your doctor Dr. LaVonne Goodman's discussion of her recent milestone publications in which she and co-authors document algorithms for treating symptoms of of three HD symptoms: irritability [ Groves 2011], obsessive-compulsive behaviors [Anderson 2011], and chorea [Burgunder 2011]. The algorithms are based on the combined knowledge and experience of more than 50 expert clinicians from Europe, North America, and Australia.



A Physician's Guide to the Management of Huntington's Disease (3rd Edition)

Martha A. Nance, MD, Jane S. Paulsen, PhD., Adam Rosenblatt, MD, and Vicki Wheelock, MD.  HDSA 2011. Includes in-depth information on: the general principles of treatment, genetic testing, updated information on medications, and an expanded section on the management of cognitive and behavioral problems.