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​Saturday, May 17, 2025

Check-In: 8:30 AM  |  Event Start: 9:00 AM


UW Tacoma William W Philip Hall
1918 Pacific Avenue
Tacoma, WA, 98042

Topics to be presented:
Research
Clinical Trials
End of Life Care
Advocacy
Care Giving Topics
Panel Discussion

*Coffee & Pastries
& Lunch Provided

Questions? Please Contact:
Debra Del Castillo
debradel@uw.edu

 

9:00am-9:45am Registration and Coffee

9:45am-10:00am Welcome and Recognitions
Suman Jayadev, MD, Medical Director - UWMC Huntington’s Disease Center of Excellence

10:00am-10:45am End of Life Care End of Life Options in Huntington's Disease in Washington State
Rebecca Hudson, Client Services Manager End of Life Washington

10:45am-11:30am HD Research, and Clinical Trials Get the latest updates on current HD research and trials!
Daniel D. Child, MD, PHD UWMC

11:30pm-12:30 pm Lunch provided – learn about Enroll-HD.1

2:30 pm-1:25 pm HD Advocacy
Get the latest reasons for being an HD advocate!
​Learn about HDSA’s patient-centered core impact set.
​Chris Becker, HDSA Advocacy

1:30 pm-3:00pm Ask the Experts Panel Individuals living with HD, families and caregivers can face challenges with symptom support and management. Bring your questions for our panel of Experts.
Amie Hillier, MD-OHSU Neurology Clinic Suman Jayadev, MD-UWMC HD COE Jason Aldred, MD – Selkirk Neurology Pinky Agarwaal, MD – Evergreen Neurosciences Institute Mikael (Miki) Stovarsky, MS, LCGC- UWMC HD COE